Today was good. Yesterday wasn't bad either...the sun and fresh air can make anything nearly bearable. Here is the newest photo of Will. It is much harder to see without all the fluid around his little head...so sad.
After we got a grip on our emotions (and a good night's sleep) after our Friday doctor's appointment, we sat down and talked about all that was going on. I called a good friend in CA and got a 2nd opinion...and he confirmed our thoughts...there is no need for me to go sit in the hospital if they cannot do anything for me. So tomorrow I will be giving my doctor a call to see what they plan to do for me if and once I was to be admitted.
I was not brought up to question authority, however, ever since the doc told me he wanted me in the hospital I was overcome with a sense that it wasn't right. I know when I am sick, and I am not one to push the envelope on my health either. But let's face it, I know that I run more of a risk of getting an infection and/or losing my mind being in a nasty hospital, all alone, for possibly weeks on end. Its a shame that we now live in a world where doctors can no longer give advice to patients based on medicine and what is best for that individual. It all comes down to liability and them having to cover their own butt so they won't get sued.
The other aspect of our story: Tim has to leave for New Jersey to train for his new job in June for roughly two weeks. This presents lots of problems/possible undesirable situations. But we decided that I will definitely go and stay in the hospital then. Peace of mind for us both.
One day at a time. Its funny how much of our life has been lived out this way. Its tough, but this won't be forever. Never again will we take for granted being able to travel outside the city or even plan something more than a day in advance. At times I can't believe how crazy our life has been since we moved home.
It has been nothing like we hoped and dreamed it would be, but thank goodness we ARE here. We are both looking to the future and hoping this can somehow be resolved soon. It will be in God's time though, not ours. There are so many uncertainities that only one thing IS certain, without all of our family and friends praying and carrying us through this...we would have lost our minds weeks ago.